MS AWARENESS: Kristin Vautour

Since March Is MS AWARENESS MONTH, I wanted to do something special. I cannot think of anything more special, than to introduce you to others that are more aware of MS every single day. We all live it, so this is the real MS.  These are the REAL stories and the REAL people that have it. You will see all types and stages of MS. I hope you see how different it can be for everyone..  I would like to add before I start this.(as I always do) check with your Dr before you change anything in your own personal MS regimen. What works for one may not be the answer for another. ~ Nancy

Hi my name is Kristin Vautour and I would like to share my story. I was diagnosed with MS on Dec 18th 2013 at the age of 30.
I believe it started in April 2012 when I lost sight in my right eye. The optometrist stated I was a “rare” case. The eye Dr. didn’t know what to expect. I regained my eyesight within a month.
August 2013, I took a fall at my camp while i was cleaning. I ended up waking up the next day with my right side being numb. I went to the emergency room and was told later on that it was a “pinched nerve” and i shall regain feeling within a few weeks. Well a few weeks later, my stomach and back went numb along with the right side. I went back to the emergency room and was given and MRI. I received a phone call a week later stating that I had an appointment to see a neurologist.
I went to see the neurologist and was later told that I had multiple sclerosis!

That was the worst day of my life ever, well besides the day i was told that i have Endometriosis in 2007. Anyway, I was sent out to have all these tests done to make sure the diagnosis was indeed correct. I later told only close family about my diagnosis and they were all crying and in shock! My little sister thought that i was going to die! I wont lie to you, I was afraid and fell into a deep depression but who wouldnt after hearing that you have a neurological illness that has no known cure as of yet!

It took me almost a year before telling the world, well my friends and extended family only because i felt that they would treat me different or give me sympathy, when really, all i wanted was a shoulder to cry on at times.

Kristin and husband

My now husband has been with me for 10 years and thankfully he is here every step of the way I would be lost without him, I finally decided to marry him, the man of my life in April of 2014!
During the few months after the fall and the right side being numb, i fell down a flight of stairs at work. Off to the emergency room I go. I suffered a mild concussion, fluid in my right knee and a week off work. Apparently, MS was a part of this.

kristins knee

I have done tons of research to find myself and get answers to the questions i was looking for.
 Day after the wedding i had a relapse where I couldn’t’ feel from my waist down to my toes.To this day, i still cannot feel my toes and have a hard time walking.
I have spent so many days going back and forth to the emergency room, that i forget the number. Its pretty bad that when i go in i have to educate the staff members about my condition and what I need once I have a relapse.
I have been on Copaxone and since my body rejected the medication, I am currently taking Tecfidera. I feel that the medication is not helping only because of stomach issues since August 2014, but that is another issue, that I will discuss when I figure out what it is. 
I have to mention that I have met some great people along the way through face book groups as well! I feel that if you talk to people who share the same illness as you do, you are never alone without answers! I have been told to stay strong and keep smiling from day one and i have been!~

That she has. Kristin has a beautiful smile and is always smiling.  ANOTHER MS WARRIOR I admire! Thank you for sharing your story Kristin. You always bring a smile girl and touch so many.  Keep up the fight friend.~Nancy

MS Believe in the cure

If you have M.S.and would like to have your story highlighted here on my blog for National MS month,

Please contact me at NancywithaJones@Gmail.com

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MS AWARENESS

MS AWARENESS

I have not posted in the last couple of days. A viral  bug had hit Here (me) pretty hard. That is just one of the things that happens with M.S. We are more susceptible to Viruses and other illness. Especially when you have a school age child that brings home all the crud from school. I apologize for not updating, but I will be extending this  until EVERY PERSON IS HIGH LIGHTED. EVEN if IT GOES INTO APRIL.

Since I got this virus I wanted to share  some things M.S.  does. I don’t want to be negative but so many people JUST DO NOT understand.  One simple thing like a cold that on a normal person could just be a sniffle that they can keep going with, literally has put me in the bed for going on several days now.  It is hard to imagine and yeah some thing “YEAH you re just milking it” NO.  This Project IS VERY IMPORTANT TO ME.

I was very upset to have to put it on hold. I couldn’t talk, stand or sit up. Still dizzy when I stand. BUT, I am finally able to sit up.  I am being fussed at for doing this right now.  MS people often push harder and do things  to prove themselves  worthy.  I know I do. It is difficult to understand when you don’t have a chronic illness, better yet a couple of them. I know I belong to a group that has some pretty tough people  in it. These are some TOUGH individuals that  have hearts of gold. They are there for me and everyone in there because they go through it themselves.

I had a friend that came here and was here for me when I was literally at my worse.  I will never for get that. I had Tina that I highlighted last that let me do “FLAT TINA” to help cheer me up. I was in a really bad place having these shingles FOR SO LONG.  They are amazing friends. I love them. I am thank ful for them just like I am my family and church family and any friends.  Support groups are important which leads me to my first key point.

ms highest rate of depression

SUPPORT*  Multiple sclerosis is a tough disease not just on the person going through it but their entire circle. The entire family suffers.  I am fortunate I have a  family group of friends and church family here. So many don’t. If you live near someone and you know they have a chronic illness such as MS If you know them, do something nice occasionally. put their paper on their porch, Take the garbage can back to  their house from the road, get their mail for them, or give them a call when you are going to the store see if they need anything. Be a friend. They may be reluctant at first, that’s normal, Don’t let it discourage you. People with chronic illness are used to doing things for themselves they don’t like asking for help. It may take a time or two. I  know there are so many times I wished my friends would show up in PJS with a movie so I didn’t feel intimidated to have to put on clothes and go anywhere. But IT IS A LONELY illness.  When in a flare you can’t really go anywhere.  Especially with secondary shingles. Not everyone is that way though. BUT you can give them support other ways. I have gotten so many cards and let me tell you that right there is a great way to show you care. just a simple card. is so sweet.   Drop an email or an instant message I know it is hard to get hold of people by phone these days. But you can leave messages. Knowing someone out there is praying for you and cares sometimes can be the difference in fighting that extra bit harder. so I encourage you to do this for others. So many fight this illness and OTHER ILLNESSES. Elderly and young alike. a simple thought of “Im here and thinking of you and  praying for you”  will help them so much even if you don’t understand.  I had someone tell me they were reading about MS and trying to understand. That was the sweetest thing i had ever heard.

sometimes further support is needed. If you cannot get to a LIVE support group in your area. There  are several places online:

http://www.MSWORLD.org is a good one

http://www.MSCONNECTION.ORG is another one

http://www.Caring.com has a list of some

http://www.Nationalmssociety.org also can put you in touch with one that may be right  for you.

Those are just a few. There are many out there. Just google MS SUPPORT GROUPS and the list that comes up is endless. MS WORLD has  different sectors under it that can put you in touch with others that have smaller groups.

national ms society

*Rest-  We all know how important rest is.  That is the one thing I remember before I was officially diagnosed. I was so tired. I used to go go go go go. constantly. Always the one doing and going. BUSY always. I cannot get over the devastating exhaustion that goes with this disease.  It is important (according to my dr) to listen to this and rest. I  know we want to not disappoint our families or friends and we want so badly to  do  things. We wear ourselves out just getting dressed to go places and it is disappointing. When we have good days we want to celebrate and we often over do it. WHY? because we don’t know when the next one will be. so we just go crazy having the best day ever getting as much done and as many memories as we can out of it as we can. We know the next day (or the next) we will be back down to the rest cycle.

ms rest after taking a shower

When we hit a remission we can feel like a normal person. It is just getting there.

*Stress ~ This is a biggie.  Stress to someone with MS is like Kryptonite to superman. We have to learn how to control stress. Or get rid of it. Exercise really helped me when I am able. Yoga, stretching, walking,

stress whatstress

There are lots of great ways to manage stress. Many MS people like to spend time creating  Making Art, creating poetry, There are so many outlets you can use. I personally love to scrapbook photos of my family and make home decor art as well as paper crafts (cards).I find that  doing things  for  others helps get my mind off what is going on in my world. (when I am not  having a shingles attack and  can volunteer) our church has so many programs to volunteer with.  It  really is good for the soul. If you like to make cards there are lots of  places that love to receive them such as the veterans hospitals, nursing homes, Ronald  Mcdonald house, Churches have shut ins Im sure they would love to give them to someone that needs a smile.

make one person smile

Those are just a few topics this week I wanted to share with you that some don’t discuss when talking about MS. I will go over others next week.

I will highlight another person with MS tomorrow. I hope you all are having a great week  🙂

thank you for being awesome

Nancy J

MS Believe in the cure

I

MS AWARENESS: Sydney Walker

MS AWARENESS: Sydney Walker

Since March Is MS AWARENESS MONTH, I wanted to do something special. I cannot think of anything more special, than to introduce you to others that are more aware of MS every single day. We all live it, so this is the real MS.  These are the REAL stories and the REAL people that have it. You will see all types and stages of MS. I hope you see how different it can be for everyone..  I would like to add before I start this.(as I always do) check with your Dr before you change anything in your own personal MS regimen. What works for one may not be the answer for another. ~ Nancy

MS AWARENESS LOOKING FOR A CURE

After a couple of years of having different vision trouble, many dr appointments with no answers. I went on vacation to an island right after spring.

Being a hairdresser, precise vision is usually a must. I came home from the trip, woke up the next day with blurry, double and triple vision. My eye sight proceeded to become worse to the point my eyes were literally stuck. I was unable to move them up or down nor right to left. That’s where the start of this journey to find out what was “wrong”  really escalated.

After two spinal taps, they found nothing and was sent home befuddled. This may seem very odd to hear. I then broke out in the hives and I was given prednisone as the result. Which as we all unhappily know is about the only thing that “fixes” us. It also cleared up my hives.  It took another week or so to “straighten up” from all that!

ms 2 ladybugs

I was then referred by my eye doctor to another eye doctor. He knew right away from having me do a few simple tests (reading childrens colored books) that I had M.S. Which at that time,1994, I had NEVER heard of …He then called a neurologist and within less than 3 days I was diagnosed with Relapsing Remitting  Multiple Sclerosis

.I find laughter in something every day to help deal with M.S. …Laughter is the best medicine!!!

MS not cooties

If someone was just diagnosed I would tell them not to overwhelm themselves with everything they hear,or  read just any and everything. It can be very scary! When going through a hard time with M.S. my advice is If you have a understanding person keep them close, don’t push them away. Try to find your comfy place, having a pity party is totally fine. Just don’t stay there forever, And remember this to shall pass.

 MS FIGHTT

Thank you Sydney! You truly are an MS WARRIOR! I have not known Sydney that long but what I do know SHE TRULY IS a fighter!  MS will not get in her way. She is very funny and has made me laugh on so many occasions.  kEEP UP THE GOOD FIGHT FRIEND!

 MS Believe in the cure

If you have M.S.and would like to have your story highlighted here on my blog for National MS month, Please contact me at NancywithaJones@Gmail.com

MS AWARENESS Randy and Susan Fedric

It is National Multiple Sclerosis Awareness month and I wanted to do something special on my blog this month.  I cannot think of anything more special than to introduce you to others that are more aware of MS every single day.  These are the REAL stories of MS and the REAL people that have it. You will see all types of people and stages of MS. I hope you see how different people are that have it. Please  (as always) check with your Dr. before you change anything in your own personal MS regimen. What works for one may not be the answer for another. ~ Nancy

Today’s post is going to be a little different. It is about a couple and they BOTH have Multiple Sclerosis. Yes you read this correct. BOTH of them.  Their story of faith and how they deal with this disease is truly glorious.  I have known Randy Fedric for some time. I will never forget when he told us he met Susan. Their love for the the lord and each other well. I just love em to pieces. They completely inspire so many and I just could not do any type of awareness without them. You will see why.

susan and randy wedding pic

Susan: “We met online… in an MS support group.

Randy was diagnosed in 2009 after going through over 8 years of symptoms. Susan  was diagnosed in 2010 after many years of weird symptoms. She also has fibromyalgia, so a lot going on kept being blamed on that.

Susan fedr and Randy

We have to go to a lot of doctor appointments. We have struggles everyday of some sort. That would cause a person to be in a cranky mood most of the time or mad at God because he allowed that to happen, but we don’t look at it that way. It keeps us closer to God because we have to depend on him. MS has deepened our faith in the Lord. We have to get to some point to where we realize that our complete and total value is on the fact that we are God’s children.

 

Susan andRandy MSWALKK

It is not how you look, it is not what kind of job you have, it is not what kind of house we live in, or what kind of car we drive, what size we are, or how smart we are. It is none of those things. That is what MS has shown me. I don’t have to be able to have the really good nursing job that I used to have to be something of value. My value is that I am a princess of the King, and that is it!. All the other stuff does not matter.”

Susan Fedricc

One of the  things Randy  realized since being  diagnosed with MS, is my ability to do things in the past. I could do anything. I could do construction, carpentry work, welding, and work on vehicles.

 

Randy fedric

Now, I am not able to do the things the same way I used to do. God has shown me that I depended a whole lot more on what I could do,  more than I depended on him. He helped me to realize that my dependence needed to be 100% him

Randy and Susan

Our advice to people out there that are newly diagnosed  and also for the warriors that maybe are having a rough time with this disease is to learn to pace yourself, learning to conserve your energy is a lifelong process, so as to stay active and not over do.

susan and randy MS WALK

Learning that when you have a bad day, it won’t last forever it is just that a bad DAY. Allow yourself to experience those days and talk about it. GET SUPPORT. Negativity is not a good thing for Multiple Sclerosis.  This is reality. No  person is an island unto themselves. Everyone needs a healthy support system.

Randy and Susan have  3 boys and 6 fur babies to keep them busy. In her spare time Susan enjoys making crafty stuff, from scrapbooking to other crafts it is great diversion therapy.” (I  agree with that Susan)

susan fedric crafty

If you have M.S.and would like to have your story highlighted for National MS month feel free to contact me at NancywithaJones@Gmail.com

MS Believe in the cure

MS Awareness Amy Donaldson

 Since March Is MS AWARENESS MONTH, I wanted to do something special. I cannot think of anything more special than to introduce you to others that are more aware of MS every single day. We all live it, so this is the real MS.  These are the REAL stories of MS and the REAL people that have it. You will see all types of people and stages of MS. I hope you see how different people are that have MS.  I would like to add before I start this.(as I always do) always check with your dr before you change anything in your own personal MS regimen. What works for one may not be the answer for another. ~ Nancy

AMY DONALDSON

My name is Amy Donaldson, I’m 39 years old.   I was diagnosed in August 2012 when I was diagnosed with optic neuritis and lost sight in my left eye.  Although I was just diagnosed in 2012 I believe I have been suffering symptoms of MS since my early 20’s.  Eventually my sight came back with IV steroids.

My MS medicine of choice is Tysabri and I love it.  The main symptoms I deal with are fatigue, memory loss and leg pain.

I have had one relapse of optic neuritis since my diagnosis.  For the most part my MS doesn’t affect my daily life.  I still work full time as an accountant and am raising two kids 9 and 13 and am married to my high school sweetheart.

amy rietel high schoo sweethearts

We have been together 23 years.  My best advice for fighting this disease is a good, positive attitude and you have to be your own health advocate.  Do your own research don’t rely on your doctor to educate you on everything.  Each day I wake up and put my boxing gloves on!!!  😉 I am thankful for MS, I’ve met some amazing friends like Nancy. God is always good. If I’ve helped one person, made someone smile or laugh then maybe I’ve shown a little bit of God’s peace. That there is hope. That makes suffering this disease a little easier to bear.

amy donaldson family

Amy is a wonderful mom. You can tell she has great faith as well as puts her family first. She is always smiling and cheerful. Even when she may have a bad day she will still have an encouraging word for someone else.  She is truly an MS WARRIOR and I am proud to call her my friend.~ Nancy

MS Believe in the cure

If you have M.S.and would like to have your story highlighted feel free to contact me at NancywithaJones@Gmail.com

MS AWARENESS Joey Marra

MS AWARENESS Joey Marra

Since March Is MS AWARENESS MONTH, I wanted to do something special. I cannot think of anything more special than to introduce you to others that are more aware of MS every single day. We all live it, so this is the real MS. There are some very diverse stories that will be happening throughout this month and hey it may go longer the way it is looking. Which is AWESOME!  These are the REAL stories of MS and the REAL people that have it.You will see all types of people and stages of MS. I hope you see how different people are that have MS.  I would like to add before I start this.(as I always do) To always check with your dr before you change anything in your own personal MS regimen. What works for one may not be the answer for another. ~ Nancy

Today, I want you to meet Joey Marra. (His story as told by his mom /caretaker  /superwoman Carole J. Stoll-Marra)

joey marra 1

It all started in Feb, 2005 when Joey was 7 years old. His eyes were bothering him and it appeared he had pink eye (I thought)
So, I took him to the Pediatrician’s office.  They did diagnose him with “pink eye”. Gave him some eye drops, sent us on our way..a few days passed. Joey’s eyes seemed worse.
The left one was red.He was in excruciating pain.We took him back to the Dr.  They sent us to an eye specialist where he was diagnosed with Uveitis.(inflammation of the iris).
I NEVER heard of it. Had NO idea what it was.
They told us there was an underlying cause..boy,they were right!!

joey Mara first ms walk

The very next day,Joey was losing his balance,had memory problems and was very tired..too tired for a 7 year old boy,I thought,
Then,he fell hard on the kitchen floor & could not get up..we called 911 and they took him by ambulance to Women & Children’s Hospital Of Buffalo.They admitted him. They did numerous tests..MRI’s,spinal tap,blood work,etc..also started treating him with steroids.
They found lesions on his brain. They suspected ADEM..he was released a week or two later only to have more debilitating symptoms..and ended up back in the hospital several times that summer..then, MS was suspected but we were told several times he was too young, not to worry.
We wanted answers..so,June,2005 we took Joey to Children’s Hospital Of Philadelphia where he was admitted..more tests,steroids,etc.

The team of neurologists came in and told us they highly suspected Multiple Sclerosis.

That we were going to need all kinds of support.But,they did not diagnose him, sent us home.
Buffalo was hesitant to diagnose him because of him being so young.Then,Joey had another flare-up..back in the hospital, back for more tests and steroids..sent home again. numerous Drs. appts. until..

joey mara my hero my son

The diagnosis day-Jan.10th,2006 Joey was 8 years old.
Came the appt,I “thought” the neurologist was going to tell us he was going to be okay.
We sat down and she came in the room saying “It looks like MS.”
What do you mean,I said? You told me all along he was too young.
She just looked at me and handed me a packet about MS & Avonex.
Told me a visiting nurse would be calling to set up a time to show us how to do his shots.

joey mara having steroidsJoey mara steroid iv

Avonex took away Joey’s quality of life,(I personally feel)..so,they put him on Betaseron which caused his liver enzymes to elevate.Copaxone came next which he tolerated well but turned blue and stopped breathing after injecting himself a few times..Jan.2012 was the final Copaxone shot that almost killed him.We called 911 again.. while we were standing in our living room with eight EMT’s. That was enough. I called his neurologist and  told him NO MORE shots!!

Joey Mara 2014

Here we are three years later.We DO NOT regret our decision and are fully aware it is possible some day Joey will have to go back on treatment. But,for now he is eating healthy, clean diet, exercising 2-3 hours a day,has lost a lot of the weight he gained from the treatments and is an honor student.

joey mara in a tux

Joey won the “Making A Difference Award” in 2006 for a book he wrote called ” I am a kid with MS”.. We went to the National MS Conference in Orlando,Florida where he read his book in front of 1,000 people! We met Richard Pryor’s daughter & David Lander..it was sooo cool!!!
Joey’s mom,  Carole, Is Joeys advocate, his cheer leader, his caregiver, from having to help him get out of bed some days, to being his eyes, and making sure he finds his way around in a store without getting lost. “His eyes are so sensitive to light he has problems seeing where he is, He can get turned around so easy in a store.”
I asked her how they handle all that goes on with M.S. she said “he has an amazing attitude and wonderful sense of humor”  (she is always talking about him and her son Jacob I kept trying to talk about her she kept guiding me back to them hahaha)
Carole is such an amazing mother, you can see it in her posts online and how she just beams in her photos.
Joey mara and Carole
Joeys brother Jacob loves to cook, actually, he does most of their cooking she says and they refer to him as “Chef Jacob”. I have seen some of his amazing dishes online with a host of likes and “what time is dinner”
joey and jacob cookingjoey mara jacob cooking
I have to tell you he is pretty amazing from what I have seen! They all support each other.  That is truly what it is about.
JOEY MARA TEAM JOEY
They tackle this as a family.  They do MS walks. Fund raising.
They have a wonderful support system for Joey and for all of them.

This poem that Joey wrote I think says it all perfectly,

JOEY MARAS POEM

Joey will be 18 on March 19, 2015.

joey mara then now

HAPPY BIRTHDAY JOEY

KEEP UP THE GOOD FIGHT! YOU TRULY ARE AN INSPIRATION AND AN MS HERO!

MS Believe in the cure

Nancy Jones

MY ONE LITTLE WORD for 2015

I don’t know about you all, but I have had a lot of trouble this year trying to think about what word to use as my signature word.  I went through all the usual, Blessed, Amazed, Grace, Love, Precious, Live,Love, Laugh, Shine, …. it all sounded so,, superficial then I thought hey that’s a word. Not one I want as THE word though. (You can see where my brain is) I have been so scattered for a while now. I think this flare up has just thrown my brain into a big heaping pile of Random and shook it around and let it go flying about. Everything has been so out of the normal it seems and we have been struggling to get back to our groove. So as I sat here tonight thinking about 2 sweet awesome people I spent time on today. (I just loved,  may I add that) It made me really stop and think (yes, thinking, It did kinda hurt I know you will ask)  😉

I need to just get to that place where I can be “Still” again. Then it hit me. AHHHHHH!!!

fat lady

 !!STILL!!!  I know, IIII KNOOOW,  that seems like such a crazy, strange, word to be MY word. BUT hear me out. (and well duh MY WORD what do you expect anything but normal right?) I knew you would agree.
Still, is a VERY versatile word and is kinda all over the place. Like me right now. It means so many things. This word can be A noun, A verb, an Adjective, even an adverb. I KNOWWW!
It describes so much of where I am at right now what I am striving for, What I wish to be, what I so very much need. And who I am.. Still me. Looking for stillness,  Still the same ol same ol, we are STILL doing this huh? see where I’m going with this? But in the end. I hope to  end the year with calm Still, peace Be Still While right now its all… Still me! going AHHHHHCK. Make sense? Im looking forward . to the end.

Lets look at the definition (s)
STILL

stil/Submit
adjective
1.
not moving or making a sound.
“the still body of the young man”
synonyms: motionless, unmoving, not moving a muscle, stock-still, immobile, inanimate, like a statue, as if turned to stone, rooted to the spot, transfixed, static, stationary
“the parrot lay still”
antonyms: moving, active
(of air or water) undisturbed by wind, sound, or current; calm and tranquil.
“her voice carried on the still air”
synonyms: calm, flat, even, smooth, placid, tranquil, pacific, waveless, glassy, like a millpond, unruffled, stagnant
“the lake was still”
(of a drink) not effervescent.
noun
noun: still; plural noun: stills
1.
deep silence and calm; stillness.
“the still of the night”
synonyms: quietness, quiet, quietude, silence, stillness, hush, soundlessness; More
antonyms: noise, disturbance, hubbub
2.
an ordinary static photograph as opposed to a motion picture, especially a single shot from a movie.
adverb
adverb: still
1.
up to and including the present or the time mentioned; even now (or then) as formerly.
“he still lives with his mother”
synonyms: up to this time, up to the present time, until now, even now, yet
“she’s still running in circles”
referring to something that will or may happen in the future.
“we could still win”
2.
nevertheless; all the same.
“I’m afraid he’s crazy. Still, he’s harmless”
synonyms: nevertheless, nonetheless, regardless, all the same, just the same, anyway, anyhow, even so, yet, but, however, notwithstanding, despite that, in spite of that, for all that, be that as it may, in any event, at any rate; More
3.
even (used with comparatives for emphasis).
“write, or better still, type, captions for the pictures”
verb
verb: still; 3rd person present: stills; past tense: stilled; past participle: stilled; gerund or present participle: stilling
1.
make or become still; quieten.
“she raised her hand, stilling Erica’s protests”
synonyms: quiet, silence, hush;

 

I think this is going to be the perfect word for 2015,

So That’s out of the way.I know you are excited huh HA HA.

 

Speaking of “Still” Im FINALLY Weaning off the steroids (GOO MEE!) So Im not sitting  picking out the marshmallows in the Lucky charms any more as much.. or ok.. Ill play along. “STILL”

lucky charms all marshmallows

 

 

That is my dream cereal though. Why they don’t make that. I have no Idea. Cause… MMMHM! :hand up to the lord::

 

I am still feeling a LITTLE.. like this but well if you know me.. I`m kinda this way even without steroids.

 

IM ADELICATE FEMININE FLOWERRR

Yeah, that with the virus on top of it. My face.. Just like that.  I kid you not. But I’m not “still” like that as much. Ok maybe.

staypuff marshmallow  man

NOW THIS… UGHM yeah. I am “STILL” lookin like this.   I love taking steroids because I feel better but man. I reallly do not like what they do to our bodies. Although we feel better on them.  I look like stay puff Marshmallow girl and Michelin man’s love child.   MICHELIN PUFF “STILL” yess I STILL look all puffed out. I know it will go away though.

 

~~~~~~~~~~~~~For my Clean eating people and MS People This  is for you~~~~~~~~~~~~~

A TIP OR TWO

RAW ALMONDS.. As long as you don’t have an allergy to nuts. Keep RAW almonds  around in the snack size (yes they make those short zip lock bags) zip lock bags for emergency snacks. In case you get caught in traffic, or You are late to your lunch. Measure them out ahead of time. Keep some in your purse, glove box in car, or gym bag. ALL THE TIME. You can measure them out by cupping the palm of your hand. That is about how many you need to eat (and don’t pile them up)  A few reduced fat triscuits are another option. READ THE SERVING SIZE.  PRE MEASURE IT OUT into the zip lock baggies.  This way you won’t over eat if you are late for meal. It is advisable to  have your meal on time every time.   That isn’t always possible. They make chicken instead of in the can in pouches now. A great quick easy GO MEAL. (can eat it with triscuits  read serving size!!) or straight out of the pouch with a fork.

When you learn to eat to live instead of live to eat. Everything changes.

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Having M.S. we are burdened with so many freaky things  Muscle spasms are a constant question people ask about on message boards and chat groups.   Most dr’s prescribe medications that will just make you out of it and all you can do is go to bed.  If you are like myself and have a child. That just can’t happen. we have a life going on and we want to live it. Not sleep all the time.

My goal is to live.  I have found some things that WORK FOR ME  and I am gladly sharing these suggestions here on my blog.  These may not work for you. So try at your own risk. I don’t know your underlying issues so please talk to your dr first ok? Deal? Thanks.

I have battled muscle spasms that are not only painful but down right freaky and crazy. They freeze up, tighten up and the screaming will commence. At times nothing will release them until I just go get shots and everything they can throw at it to just MAKE… IT… STOP. that has happened twice in my life. Looked so freaky to have one leg and hiney cheek tensed up all the time and the other normal.

So when I say We have tried EVERYTHING. Im serious.

I do a LOT of stretching. I have found keeping my muscles stretched helps.

HERE

is a FREE  illustrated step by step manual from the national MS society that shows you several  stretches you can do daily to help alleviate or lessen these muscle spasms. At first it may be hard. It may hurt. You may not be able to do them. Don’t quit, Don’t give up. Keep doing it.  All this didn’t happen in a day. MS got worse over time. It will take time to help.

Start slow on the stretches and build your way to more.

I also use a series of Essential oils to help. Lemon grass (diluted with  coconut oil) because it is a hot oil and can burn your skin also helps me.  I have a mixture of essential oils that I have added to my regime that help me.  Lavender and Lemon grass  are 2 of the ones that seem to help ME to relax my muscles the most when spasming.  Everyone is different and what works on me may not be what works for you.  I will be glad to help you with finding what works for you if you are interested.  just let me know.  I have done a lot of research and also have contact with very knowledgable accredited people that will make sure you do it correctly.

PLEASE DO NOT just go to a store and buy oils and start using them.  All oils are not made the same and there should be a lot of research involved before a decision to use  them.you should have support in helping you educate yourself with them as well.  It can be dangerous just like using vitamins and herbs. It is medicinal and can also interfere with medication you are taking. So always let your dr know if you are taking any essential oils along with a health care medical routine.  There are many do’s and Don’ts. I would be irresponsible if I just  told you OH this helps me get it!! So know that  it is important to use them safely. I care that you get relief not more problems.

Thanks.

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sudden changes in temperature trigger ms

It is believed mostly that HEAT can cause MS to go all bonkers but, DID YOU KNOW, that any sudden change in temperature can trigger an MS flare? This is true.  This was released in a study recently  that any sudden change in temperature can cause symptoms to worsen. So when these “Arctic Blasts” hit and we feel all ickified.. its not just oh I feel cruddy. It truly is our MS. So be watchful of symptoms just like you do when you flare up at other times.

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do you know how much it hurts to say no

I know people with Chronic Illness get this.

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hello nerve ending has been disconnected

Keep fighting! Never ever give up!

I’m …

“Still”

Nancy

with a Jones 🙂

She Scraps for Sanity?

Since the first of the year we have had all kinds of struggles to say the least. Multiple Sclerosis is that ugly little critter we keep hidden in the basement. WE KNOW it is there and can raise its ugly mischievous head at any time. Because of it, Viruses and such are so much easier to just knock me down sadly. I had done SO good. 2013 had been a GREAT year. 2014 started out EHHH kinda yuck. Some wicked stomach bug attacked me like kryptonite to superman. IT WOULD NOT LET GO. THEN because of the fever and Viral infection (Cue psycho music) out came shingles. NO I wasn’t upset about stuff. well some stuff, it was mainly the infection that caused it. SO I have been in my house back like the old days since January. A good reminder of how things were.

NO Driving No gym (can do a little at home but mostly stretching blah) … No going out into the world hanging out with friends… No church activities.. NO CHURCH much. I did get to go one Sunday before she shingles started then wham… out again. I do listen to it online but it just is not the same as getting to participate. I love our church so much. I had been feeling like A NORMAL person again. Like before. How quick the lord can remind us that we need to be ourselves and not try to be something we are not! And we all definitely know I AM FAR from normal.
HEY… I heard all the AMEN’S. YOU DID not have to agree so quickly to that! <grin>

SO what exactly have I been doing? I knew you all were sitting on the edge of your chair just wondering and just pacing the floor in angst waiting to find out. WHAT has Nancy BEEN DOING.

I have been scrapbooking.. yeah I know.
I have been doing the 2012 photos of our Disney trip which have really been bringing back good and also some sad memories. Most are wonderful but also make me miss Ma.
I have laughed so much but also shed so many tears. I have sooooo many photos to scrap.
I have joined a challenge group for February called L.O.A.D. (layout a day)
Where you do a challenge layout a day. I have done this before and it is soo fun. I have really been getting things done. I have 22 ish pages done so far. (some of them I did BEFORE I started this challenge group)
I wanted to share some of them with you. (I KNOW you cannot wait)  

These are phone photos so … (hey I have had shingles be nice!)

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(I did these before LOAD)

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The silver circle things… those are wishes that Fairy Godmother gave us.

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This was from a sketch I found on pinterest

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first page in our Disney album

 

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another sketch

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photo of this layout didnt turn out so great (night time in my kitchen)

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Bella didn’t like this page.. she said it was boring.. and that I COULD DO BETTER. ha I will remember that dear child.

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Whispering Canyon (our favorite place to eat)

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Photos out and about around Wilderness Lodge where we Stayed. 

I have since I am feeling better, but still couldn’t quite get out yet, have started cleaning out, organizing, donating, and rearranging in my crafts and art space. I found lots of pages I made from when Bella was a baby.

I have learned some important things.

1. USE GOOD ADHESIVE. When I started I used glue sticks and whatever adhesive was cheapest. Those pages are now falling apart, missing letters, and I am now reattaching things and missing things off of them that I cannot find.

2. EVEN THOUGH alphabet letters have adhesive on the back of them.. GLUE THEM DOWN ANYWAY. Especially things like self adhesive chipboard letters or embellishments. I have so many that are missing that there is no way I can match them again. Some of these are 8 and 9 years old. I will just photo them and pray someone has hoarded the few letters I need and pray they will share. MOST scrappers are nice that way 🙂

3. KEEP YOUR FINISHED PAGES IN SCRAPBOOKS WITH PAGE PROTECTORS (that way if the embellies fall off you have a good chance they will fall off into the page protector!!) although I did on some of these but they were put back upside down and fell out of the page protectors…sigh.

4. KEEP RELIABLE glue and or adhesive YOU KNOW  is reliable and dries quickly at hand so when you look through your albums. You can make quick repairs. DO NOT put it off till later. YOU WILL FORGET and then the letters will be lost. (yeah it happened)

5. IF YOU DO NOT HAVE ALBUMS for your pages at least put them in page protectors and put them in a safe place. I found a STACK of layouts (yes at least 20) that were a couple years old in a shelf. just stacked up there.  YA NOT GOOD. buttons had come off the edges were bent up. I was NOT happy. 

I AM SURE there are many more tips you all have learned that you could add to this. FEEL FREE to add them in the comments. Things you have learned over you’re years of scrapbooking. Care wear and tear of pages, mini albums etc.  I welcome your advice. 

I am sure we have some new crafters or even those that have been doing it a while that may learn something. 

 

 

Take That M.S.!!!!

I know y’all have heard a lot about the gym lately and, all about the food I am eating  blah blublah blah.   WELL Ya know how when you try something and you have felt like just death is knocking? For instance:  you  normal people (is there such a thing?)  you get the flu. stay with me here, work your imagination muscle.  You feel like “OK lizbeth.. Im comin. This is the big one” But you have the flu..  Then :insert amazing magical noise: You take some Flu killer night time special something that knocks you out.  You look like Drew Brees (drool) in the commercial (drool) passed out asleep, resting better than you EVER HAVE with the flu. (let it be noted I do not work for some flu killer night time special something that knocks you out company or am I affiliated with some flu killer night time special something that knocks you out company OR here by or ever have been or ever will be getting any type of kick back, trips, anything actually (cause I made them up duhr) from said company so use whatever flu med of your choice was just an example so don’t sue meee or Drew Brees. thank you I hate dumb people make this necessary,  deeep breath. end note)    SOOO You wake up the next day. YOU FEEL SOOOO much better.

Well, what do you want to do?  TELL EVERYONE.

“OH MAN GUESS WHAT?!? I felt sooo horrible and I tried this xyz flu killer and I slept like Drew Brees (drool) last night. I feel so much better. ::sympathetic voice::   I saw you sneeze/ DO You feel baddddd? ::all excited:: You HAVE TO TRY THIS!!!”

YOU DO IT.. admit it. YOU KNOW YOU DO! we all do.   ANy time we know someone is suffering We want to help our fellow man/woMAN FEEEL BETTER.  It is human nature. We share anything that is good. We also share what is bad.  IF we take a therapy that made us worse. WE tell it from the mountain top. So why not share what works for us. We are in this together. No one wants to suffer.

I am NOT PUSHING my ideas on you. BUT I AM excited that something IS FINALLLY working. After trying EVERYTHING. And trust me I HAVE TRIED a lot of stuff.

I am just telling you. The ones who  have read my blog, for years and if you look on the side there in archives IT GOES BACK A LOOOONG WAY. The ones that  know me personally that have seen me in my darkest days, in a wheel chair, on a walker, Listened to me cry,  seen me eat UP with shingles, countless hospital visits, Teachers that have been there for us with our child, family that knows just what a rotten deal this has been KNOW how hard it has been.  I know we have many rejoicing with us and that are so happy right along with us and praying this keeps us. I want nothing more for this to be a forever thing. My goal list and bucket list is GROWING DAILY.  The things I am wanting to do … They are getting BIGGER!

So, What I am doing right now… There is something to this. Read this last post for more information. It is WOW.  YOU KNOW how skeptical I am. I have never believed in that no sugar and exercise stuff. If you do not believe me ask my friend Di,  that is a personal trainer and vegetarian. (she lives in Cali.)  She has been after me for yeaaaaaaaaaaars and I have blown her off. Ya she is grinning so big now.  When MY DR suggested me talking to Mike. I went in and saw with my OWN EYES. Felt it with my OWN BODY. I would have never in a million years believed it.

I KNOW this is a not a miracle “cure” I have worked hard doing this. I mean i have 43 years  to undo. 

I have had emails and messages people that have been coming at  me with negative like you would not believe from every direction.   They just inspire me to work harder. They obviously have NO CLUE what I have been through in my life and what I am made out of.  I thank them. Appreciate the motivation.  They are like gnats on a dirty dog compared to my real problems.  Opinions are like …. noses everyone has one.

When you have REAL LIFE to deal with. A disease and not just one  and been through some MAJOR life flipping stuff, will power is a necessity.   Can’t is not an option. Put that in your mind that YOU WILL do something. Don’t waiver. Keep focused.  If you are physically unable to move a body part.. use what you can to help you physically exercise that arm or leg.  keep it moving. work the muscle.  Don’t have weights. Do you have water bottles? soup cans? too heavy? empty them. start slow. 3 times is better than 0 times. Tomorrow DO it again. ANY KIND of movement is better than no movement. THIS should be an ms persons mantra. If you can even get it to move a little. That is progress. KEEEEEP MOVING. As long as you can. We have to fight for our right to MOVE! ( against our own bodies) No one is going to understand as much as our own self understands!!

Remember SUGAR IS NOT OUR FRIEND. Talk to your DR. If they will not work with you on finding a physical therapist that will work with you and your insurance or medical plan. Get a dr that will. or keep contacting your MS local office. Call a local church or office. THere are people that will help you.  DO NOT GIVE UP. YOU are your BEST advocate. IT only takes an ounce of will power. POSITIVE ENERGY WILL BREED POSITIVE.  YOU CAN DO THIS. Start eating healthy if for no other purpose but for yourself. YOU ARE WORTH IT.  If you are in the Mobile Alabama area. We have an MS group that meets on Tuesday and Thursday for nutrition and exercise. IT WORKS.  

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MR WILLIE works out he has M.S. and MANY other things wrong. HE is in an ELECTRIC WHEEL CHAIR. HE IS MY HERO.   .. He is one of a million reasons I get up smiling each day and haul my butt to that gym.  He is a huge inspiration among MANY MANY OTHERS that are there. I Work hard eat what they tell me to and keep at it.  TAKE THAT M.S.!!!!! WE JUST KICKED YOUR  TAIL AGAIN! For more information feel free to contact me and I will gladly get you in contact with the right people here in Mobile. 🙂 Keep moving

 

WISH BIG!

NancyJ

What I have been Up to…. A WHOLE LOT REALLY…

So if you follow me on instagram,  twitter or facebook you know I have been going (with Dr supervision, actually it was his suggestion) to a personal trainer, nutritionist to help me with MS. Can I just say “THIS HAS BEEN THE BEST THING EVERR FOR ME FOR MY MS THERAPY?!!! and you guys KNOW How I was!!” IT alllll started when I went to see Dr. Eckstein, My new MS Dr and I was fussing about all this medicine I was having to take.  I suggested getting off some of this wretched medication and he said “HEY GO SEE THISSS GUY!” Little did I KNOW what I was getting into.   (here is where you might wanna go to the bathroom and get you somethin to drink.. water with lemon preferably and a snack … fresh veggies maybe? NO PROCESSED FOOD! see they have created a monster ….. (that is a compliment by the way.)

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My first day of walking into this little gym. (I will start naming names  in a bit. I want all of you to hear (read) .. my story first. so get comfy. This wasn’t / isn’t easy.) I thought “OH MY LORD WHAT have I done. THERE IS NO WAY I can do this.  I mean, I don’t even drive! I can barely see out of my right eye. I do good to walk most days, and THEY WANT ME TO DO WHAAAAAAAAAAAT? no way, I will be able to do all this equipment.”  I had a HORRIBLE attitude.  Admit it .. you all think the same thing when you think… MS AND GYM.. You get intimidated by all the weights, all of  the movement,  money and thinking it will last about ehhh a month and then you will collapse from exhaustion, flare up,  and be done.  I SEE YOU… You are nodding your head yes, aren’t you? mm’hm, I did too. Your talking about a girl here, that was in bed most of the time. I had a walker between my bathroom and my bed to keep me from falling.  HOW many exasperations had I had where I had to go through physical therapy, be in a wheel chair and walk with walkers, have rails just so I could walk around safely.. .

I have as much equipment as a nursing home. ya ya this was soooo not gonna work. The people that know me.. Know how it was when It got bad. Yeah some days I LOOOKED great. It is a curse I’m just gorgeous can’t help it. (insert laughter) Then there were other days…. you know those days, MS  people … When reality hits and that feeling, like a train hit me and I can’t move  I beg for death to come swiftly. Shingles would knock me down months sometimes at a time. NOthing literally, NOTHING will stop the pain. No medication will work. and yes we had tried many varieties till I just said ENOUGHHH!!! I am doing ehhh pretty ok so We beebop up in here. They tell me Tuesday and Thursday they do this little MS group that some people come to and I can join them to do exercises and stuff. I thought well ya, ok, I can at LEAST try that. I mean, They have MS too so Im sure they “get it” what could it hurt huh? So The next I believe it was a Tuesday I go in. WOAH DUDE. my eyes got opened. There were little ol ladies with walkers. There was this man in an electric wheel chair and I was greeted by this dude that looked like well like “The Hulk” Except he wasn’t green. He was all smiley and laughing and encouraging all these people. They all  seemed to like  him… hmmm.

Maybe this wasn’t as bad as I thought. Soooo I kinda did what they said. Still thinkin this was kinda crapp. Listened to them talk. Saw this one Lil lady do leg lifts that could barely walk. ImageYa I felt like a wuss. I couldn’t lift it 20 lbs without grunting. . I was so so weak. She has a walker can’t walk on her own and is doing 200 lbs and smiling. Ya MS Teresa Humbled me.. I used to do this stuff. 20 some odd years ago but wait a min these people have MS?? I was very disappointed I had let myself become this person. YA I have MS but this attitude wow. I never had this kind of attitude. There was a guy there in an electric wheel chair WORKING OUT! HE COULDN’T EVEN WALK. BUT he was there doing what he could to make his body stronger. He could  have said ahh forget this and stayed home but NO he was at that gym every time workin’ out. Thanks for skoolin’ me MR Willie just by showing up. Love that man! Image We had an upcoming trip we had saved and scrounged and worked so hard for,  finally we were taking our  daughter to  Disney. (Yall can see the previous posts photos) I wanted to be able to enjoy it with my family not stay in the hotel while they were out having fun. I figured this would be a one time thing .. little did I know.  So I made up my mind that day. If This sweet lady could do this. I could do this. If this man in this electric wheel chair could get in there and bust it and do this. BY GOSH I can do this.

I saw the owners wife (Jan Horn)  and read her story. OMGOSH this sounded similar to MEEEE. I just sat on my bed bawling. Reality hit. THIS WAS ME. FINALLY I felt like a light bulb came on. Maybe this really IS SOMETHING that CAN HELP. No one can do this BUT ME. There is no magic formula. THIS disease HAS NO CURE. No one is going to help me, BUT ME. I have spent all these years in this house. laying in bed because it hurt,  like a prisoner. FINALLY I might get some form of what WAS my life back.

There wasn’t much time before Disney, I caught a virus and a minor round of shingles. I think my body revolted. I still tried though I kept going back after It would go away. My Dr. switched me to Copaxone (that was fun) that hopefully would help me not break out as much and make it easier. Finally the time was here to go to Disney. They even gave me tips to help me get through the trip easier. We went to Disney Happy. We  had an amazing time. Image Then the most horrible thing that We could ever imagine, happened. We got back, 5 days later My precious mother in love. Bella’s loving nana.That basically held that child’s heart. My husband John’s mother, went home to be with Jesus.  Just like that… she was gone. This hit like a ton of rocks. We didn’t expect it.No one did. This was like a kick in the stomach to say the least. We were in a daze. All we could think was but but we  ugh just were at Disney and and… but…   We couldn’t make sense of anything. My brain just didn’t function. My child. My baby she still  is not all well… you can imagine. We didn’t see the signs, that looking back may or may not have been there, but she was the kind of person if they had or had not,  she never would have said one word. This took a HUGE HUGE  hit on our family.  mentally ,physically, emotionally well everything. It took several weeks.

Time kinda stood still. Everything went Chaos.  We are SO thankful for everyone that helped us and all the many prayers and support. It is appreciated . It took a while but, I finally got back to the gym. I needed it in so many ways.More than I really knew. It was hard. My emotions were still so raw. I had had the flu on top of everything.  I tell you.  They are the most amazing group of people with support for MS, but NOT just MS. There are others that go there for MANY many other things from lupus and RA to people with Diabetes.

There is a little girl a little bit older than my daughter that comes in  working on her diabetes.  Bella has met her a few times. I hope some day they can be work out buddies. It will be good for both of them I think. They Helped with my situation (with lotsssss of patience) find the right nutrition to help me  get on this clean eating thing.. I am very tooky with food. “Hulk”  AKA real name MIKE doesn’t know the word no. = HE will figure out a way.  There has to be a food you like. There is always an answer.  He Also will help find  what helps you  stay on the right path and keep disciplined with eating. Accountability for me is posting photos of what I am eating on instagram.

I can show them what I ate and they know if I ate enough whatever or not enough and I was less inclined to not eat anything I wasn’t supposed to if I had to take pictures of it. (and Bella would tell on me).

 

Other people also joined in with encouragement and showing me different ways to make the sweet potatoes and salads etc. Same ingredients just THEIR take on the same food. Has been awesome. Now I have a group of people that we are doing this and it well.  ROCKS! As Mike (hulk)  says “He can make it as easy as I will do it.”   It is simple… but it ain’t easy. . Learning to read labels, knowing what to look for (that’s work) I told him  what my goals were, what I was trying to accomplish.

He respected me fully incorporated what my dr wanted, (He had done this a time or 3)  He knew what Dr Eckstein expected. He also knew the hard part…  he had to get my way of thinking to align with theirs. (I know yall are laughing right here because yall know me)  He had also learned sorta quickly  What I didn’t respond well with.. Im not a hard person to read.  I express myself well.)   We pick around A lot and have fun I laugh easy,  but he knows when I am serious I also know when  they are.

Gradually through LOTS of encouragement I have been slowly but surely getting there. They have a lot of patience.  (I keep saying that huh?) Bless em. BUT, I have worked hard. I do have a lot of will power and I do focus when I finally get my head in it and my heart in it.  It is hard work. You have to want it. I had to get on the same page and understand what we were doing.  I do have a brain disease  don’t forget so I don’t always understand. I get really bad at times and totally get deer in headlights on things I do every day and get totally embarrassed. (I don’t remember simple things.

That I SHOULD know like, a phone number or my PASS WORDS  duh, oh geesh. Or telling someone how many houses down my house is,  (or the name of the road I live on) Other days. I am fine. I didn’t want to play biggest loser.  That scares me. I kept getting confused that this was what we were doing and I fought it. I didn’t want to loose a large amount of weight in a short amount of time. My focus always is leaving feeling better than when I went in. Feeling I accomplished something. I have to say that now That always happens. They challenge me with New things always.

They throw in something new to make me work  a little harder and think, even if it is do my routine in reverse or try to make me remember my stretches, which I never do…  so I guess ya I’m working my cognitive skills too by them changing it up often. . I like that. . actually , LOVE IT! (now) I hated all of it at first. I won’t lie. It was hard, I keep saying that but I don’t want you to think you just walk in there and it falls on you, bam!…  change is always hard, but I kept going, I keep going. I changed my diet gradually. I didn’t do this all at once. .  I have been going since November.

This is now March. so you see it has been gradual. I am just now able to get really really serious with it since January. We had a good many things happen or maybe I would have seen more results sooner.  BUT, I had to take it as it came. NOW… I can REALLY see  changes. I am now eating clean no processed food and sugar free. These pictures from Disney… were in November. Image

 

 

Image As of now I can see better. I don’t have to wear my cheater glasses all the time like I used to. I can drive a little bit now (because I have  peripheral vision in my right eye now and i can see just better with my right eye again. I passed the eye test finally. go me)  I still don’t drive in rain or go very far.if I feel over tired or weak I just still let hubby take me.   Mobile is scary traffic buddy! I am stronger now. I can do the exercises now and not groan (as much). They see progress. I see progress.My husband sees progress most importantly MY CHILD sees progress. I went to the dr to have a check up. My blood pressure is lower, I have lost weight.

 

Most people ask me what have I been doing your skin looks so good, your hair is getting so long and shiney  you just look different.  (I musta been lookin rooouuuugh) Although, that has NOT been my focus ,  ya I wanted to loose weight, but I knew if I focused on the other stuff  the weight would come off. I am steadily dropping and getting back into clothes that didn’t fit before. I have muscles now I didn’t have. BUT as always my main goal is I want to get healthier and want to be able to do things again. Be stronger. Play with my child. Not miss field trips. Be able to withstand heat. GO TO THE BEACH. WALK without pain. not have to use a scooter or wheel chair. Lean on a walker when I get up in the night or ever, Get off some of this blame medication, I have a laundry list of things that are my true goals  I am slowly, accomplishing.

**Weight loss is just a side effect not the true focus. Its just as I call it the Bonus gift that comes with the package of eating good stuff and exercising with like minded people. I now can go for up to 35 ish  min, some days on that bike that don’t go anywhere. (when I have my good music going) I can lift myself on the bar now. (with arm straps) This is a HUGE accomplishment for me!  Image and YA I HAVE MS. SO DON’T SELL YOURSELF FOR LESS thinking like I used to do saying “OH I have this disease so I can’t do this” .  you can do it. You really do not know what you can do if you do not try. I know I can now. I got this big ol man that said I could.. go argue with him I dare ya. I have more energy. I have a much better attitude. I cook simple meals for the entire week. I am talkin goood food. No junk is goin into this body! The bible says your body is your temple. We need to treat it that way. DO YOU REALLY want JUNK all up in yourrrr temple? Image Or do you want fresh healthy good stuff to go in your temple.   I don’t just eat salads I do eat them A LOT so I get enough of my Veggies all at one time. I eat wraps and veggies and meals too. But I do eat a salad at least once a day to get LOTS of Veggies in there for different Vitamins that I need! I  thank you Mike and Jan Horn, Billy and the rest of the staff at Personal Training and Nutrition ALSO our little MS group that CAN! You all sure did open this girls eyes,  made me change my way of thinking and have an entire new outlook on how to treat  MS for my life. Image This is my Dr E. (my MS Dr.)  DR Eckstein. I think a lot of you might be familiar with him in the M.S. world especially around UAB and now the Mobile area. Here he is with Mike and Jan Horn at the fitness and nutrition Seminar Held at PT&N (Personal Training and Nutrition) Recently.   Dr. Eckstein totally supports Mike and Jan, Personal Training and Nutrition and What they Stand for. He is the one that sent me and our other MS people to Mike. Our group is growing which is great that MS patients are learning about the importance of nutrition and exercise in their treatment of MS. Sad how the numbers of people afflicted with MS are steadily going UP!!

Dr E. Said it best in that seminar “that You may not can do everything, BUT you can do SOMETHING, if it is just picking up soup cans and lifting them. No excuses JUST KEEP MOVING. Soup cans too heavy.. use them empty. THERE IS ALWAYS an answer. Dr. Eckstein  gave a wonderful talk to us just basically backing up everything that Mike (the hulk as I jokingly call him) tells us. It really is a good feeling to sit in a gym with  your trainer and see your doctor up there commending him on what he is doing.

It was an honor to be there among his patients learning and experiencing this first hand.  I am blessed to be in Mobile, Alabama and have a doctor that is compassionate and willing to go the extra mile and send me to these awesome trainers. I am grateful. I feel better than I have in quite some time.

Will there be set backs? This is life… Roads curve. Will I adjust when it happens? yes.why of course.  I now feel confident I have more options than just here take this. . I have  more control in my life besides laying there WHINING that something hurts. I know there is a place not far from me I can go stretch and do something to possibly work past and through that pain, through exercise and focus, without having to depend on some pill that will make me feel out of that control I want to have.

I am glad there are people out there that care enough to help discover ways to help people with so much pain every day find other ways to deal with it.  I realize sometimes it is necessary and I am not looking down on medication. Not at all.   Just that thankfully this is another tool we can use to fight this disease.  Something else to help me become stronger than MS. Hopefully you can also. I hope this will inspire others to give this a try. I never thought I would be one to do this. Not in a million years.  IT WORKS yall. I am proof.   If you would like more information please feel free to contact me.  I can get you in touch with the correct people.