Whats this healthy you speak of

Being healthy I think is a privilege sometimes. No I’m not making fun or trying to get under anyone’s skin so calm yourself. Think about it. Now days, EVERYONE has something.  We as humans are so fragile. We like to think we are the greater species. If you think about it we aren’t.  There are things out there that can take us down in just a second. From viruses to  wounds.  And we are the top of the food chain!!  Diseases are everywhere and Im sure we don’t know the half of it.  We have to take the pro active to stay healthy. Yes healthy people still outnumber the sick. Thank you lord. Value your health.

Treasure it, protect it, So many take it for granted until  bam… they don’t have it anymore.

Health is not something you want to test to see the limits of how far it can go.  Dr’s can only do so much.  yes there are great medications out there but do you realize each medication comes with risk. (read the side effects people)

If you already have an illness what then?  well, From what I understand, have experienced and learned.  Guess it is pretty common sense.   You build up everything around it like a big shelter. Eat what you can to fix it, believe it or not food if for  healing.  when food isnt enough talk to your dr. tell them the truth about where you are in treatment options and WHAT YOU ARE WILLING TO DO.  if you arent going to follow the direction then whats the point?  They can’t help you if you don’t help yourself.

Some of the medications that we end up having to take though, I tell ya…

I feel like this little dog! On many occasions.

If you tell your dr this medication is interfering with my daily life that I want to be active and live. Trust me. They will help you find options. If they won’t FIND A DR THAT WILL.   YOU HIRE THEM.

You have to be open to the fact that there is only so much they can do though. reality is reality.

Multiple sclerosis is a hard disease.   I know that so many of us want to do things that we just are unable to when we get in flares. The depression of the life we want and the life that we are in just doesn’t match at the time. We have to keep looking forward.  Think about this.

When I was first diagnosed there were 4 choices (plus steroids there is always steroids) of medications for multiple sclerosis treatment. DO YOU KNOW THAT TODAY.. THIS DAY there are 11?

Yeah I just read that.  So that should show you there are improvements being made.  This should show also other diseases that things are happening with research.

Another thing with M.S. I firmly believe we have chemical sensitivities.  I know a lot of you will say “YEAH RIGHT” I used to be one of those people. I proved it in myself.  If you want to say yeah right fine. what is the risk. OH yeah.. feeling better? Prove me wrong.  I DARE YOU.

 

~~~~~~~~MS AND DIET~~~~~~

I don’t like to use the word diet because it isn’t it is life style. You have  to completely change how you think. I am not saying you cannot enjoy the occasional donut but you cannot jump off the lifestyle you have an underlying illness that will come screaming out like vultures.  ask me how I know!!

Here are some of the well known MS related diets. Personally I just like clean eating. These basically have all of the same in it and are structured toward illness.

*CHECK WITH YOUR DR BEFORE STARTING ANY TYPE OF DIET OR EXERCISE PLAN*

http://www.overcomingmultiplesclerosis.org/Recovery-Program/Diet/

http://www.swankmsdiet.org/

http://terrywahls.com/about-the-wahls-protocol/

Terry Wahls is amazing!!

Paleo is a promising one also. Terry Wahls bases a lot of her diet around that.

 

~~~~~~~MS AND EXERCISE~~~~~~~~

an object in motion stays in motion.   Move it or loose it.  We have all heard the phrases.  They are awesome.  There is some truth to them also. You see people that are still active at 90 years old and people say “oh Good genes.”You talk to them and what is the same thing they say? They stay active.  They are doing something every day with purpose.  We can not loose our purpose.  So we have to get up and move. If you are unable to get up then move it in your chair or where ever you are. If you can’t lift anything but your head lift your head! MOVE SOMETHING.  KEEP ON MOVING. If you stop then.. well.  you  exactly that. Don’t let can’t be your word.

Stretching is important for Multiple sclerosis and well anyone with anything actually.  It keeps your muscles stretched and helps us with those GOOD HEAVENS those muscleeee spassssmmms. We hate to so much. We can stretch through them!!

I found this page that has some great stretching exercises. It shows you how to do them.  look through it and get up and do them. You may like some of them You may not like some of them. Do em anyway with me.. 🙂                     You can find it                    HERE

 

Sorry this is so big but If I couldn’t read it… I figured my MS people would have trouble as well.

~~~~Some funnies and other stuff!~~~~

How many of us can relate to the above huh? NOW you understand why I want to get the diet in check?

Sorry This made me cry I laughed so hard. (still laughing)

Hope you all have a wonderful day.

Find something to smile/laugh about.

smooches

I am “Still”

~~~Nancy with a Jones~~~

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A flare by any other name is still.. well A FLARE

Nothing is more frustrating than the unknown. The uncertainty of unpredictability of a disease that no one has really any control over. It leaves you powerless and spinning like the tidy bowl man round and round down that endless drain of despair of flush. We all grasp for the golden ring of hope, the positive behind every situation. The strong arm to hold us up over the hump to make it through but glooming over is always the thought will it happen?
Well that is exactly what happened. I had been making it along rather well. TOO well I guess you say. beautifully. Eating good. Exercising. Getting to do so much I have missed. Beach time with my girl (HEAVEN)                                                                                                                                     Being able to drive again and work out (LIKE A BEAST MIND YOU!) Being able to feel like myself again. THE NANCY I know I AM. Not this person that is in a wheel chair or on a walker. on massive doses of ridiculous medications that make me feel like a zombie. It is like a light switch popped on and I came out of a coma. It has been so wonderful for my child and for my husband especially for my self and my psyche.

I have enjoyed every second

going and doing as much as possible. You can’t help but have the thought, though, of  how long will this last?
I know, I have been eating good and proper  with LOTS of help!

and exercising

and trying to keep my stress down to a minimum but hey LIFE HAPPENS. You know how some people just live to PRESS your buttons and see if they can set you off by beating dead horses. Bringing up everything in the world they can to see if they can bring you down.

 That is what I need to work on.  How to not let it get to me. How to deflect it and understand why they have to be that way. It is so hurtful and makes no sense why. breaks my heart. I still don’t understand that. What do they gain in my being sick?  Instead (dr orders) I have to separate myself from it. This is life or death.  yes I have heard this many times but he is NOT PLAYING now. He wrote it on paper. This is Not just oh I feel bad. This is not swallowing face going numb losing eyesight. major organs can fail. I don’t think some people get it. NO I am not whining or complaining just want people to leave their drama over ~~~~~~> and their nasty comments away. If you can’t be supportive. Then go away. simple as that. I don’t have time to be anything but happy.

 Sometimes I wish there was a switch in my brain I could click off to make me just not care. It would be so easy. Especially when it involves my baby girl.
she is my world.

My husband’s and my responsibility  solely is to protect her and to raise her in the way we promised before God. We stood in a church and vowed we would raise her to not take up to ungodly means.  We were blessed with this child we thought we never would have, It was our duty to return our blessings and thanks to God that promise  and we will keep that promise. NO MATTER what. No one will get in the way of that. Nor will a disease.

We sacrifice whatever to make her have a better life than we did.
Having said that. She has gotten very used to me feeling better so this flare up is hitting her very hard. She was getting used to the mommy that got to play. That was getting out playing outside. Going to the beach, at the gym all the time. I was making her so proud. She is NOT NOT NOT happy right now. she is struggling. It hurts her heart. which in turn breaks mine. Disappointing this child is the biggest issue I have. I want her to be proud of her mom. Not to be embarrassed her mom has ms. I want her to see her mom as a fighter that doesn’t let it stand in her way. That will fight the dragon and not just fight it BEAT IT. I had a very strong example growing up. I guess I want to pass that on to her. NEVER give up. I don’t want her to know the word quit. I want her to know a strong sense of self as well as will power.

She can do anything she puts her mind to.

I know it is ultimately her decision. She is her own person. We can only be the example. I just can only pray I give her a good one to follow. That she knows we are relying on the good book, the man upstairs for answers,and each other to keep it real. Staying positive. Never quitting and giving her all the possible love and opportunity we can muster in our beings                                     .

Truth is, A flare is a learning experience. set backs happen. It doesn’t mean its the end it just means its time to regroup back up re evaluate and try again. Dust yourself off and get back up. that is the important part. GET BACK UP. Never stay down keep going my dear. keep fighting. Keep dancing, keep singing, keep smiling. Things happen. Life will throw curve balls we just have to learn to adjust the way we swing the bat.

This is only temporary. You are forever. We are forever. Us 3. No matter what comes up we got this. no worries
Stay focused on what we know… what we know works. What we know doesn’t work, we will  leave outside influences where they are. BE POLITE but,  concentrate on our goals and keep focusing  on the challenge before us. we got this.  Love you with all my heart and soul ,

Love your mommy and daddy and yes charley and the 4 cats!

Isn’t she Pretty?

Isn’t she pretty? IT must be SO much fun to be 4. I had mistakenly shown her where I keep the “old makeup” Halloween when I let her wear just a tad of blush and lipstick with her beautiful princess costume.
BOY Was that a mistake. She snuck off and ughmm. Made up her self. She came to the doorway and said. “Mommy? I loooOVEEE youuuUUUUU” and my first thought was UGH OH what did she do. I spun around and said Oh my goodness. I had to count to 10 and then hide my laughter. I grabbed the camera and took some photos because I figured, one day when she is about 16 and driving me crazy this would make GREAT material to threaten to blow up bill board size.
I was upset that is was on her uniform because that is expensive. But I just prayed that shout (and not me yelling either) would get it out. The fact she dumped all my lancome powder in her shoes OH WAIT.. THOSE ARE MY shoes. When she walked she had little powder clouds coming out of them. GRRRRRRrrrrrr. It was getting worse by the second.
Then it dawned on. Hmm if she looks like this. I wonder what the bathroom looks like (she had said she was going potty) I went in her bathroom and no evidence. she said UGHmm MOMMY I was in YOUR and Daddy’s Closet. OH BOY I thought. I walk into our bed room and oh my gosh. She had it all in our closet. all over the wall but what upset me more than anything was she had to move 2 boxes and Johns clothes that he sleeps in (I have 2 boxes stacked there and he lays his sleep clothes on top of it) and open the box (that had tape on one side) and get in it. ANd all of this in like minutes. SO I say YUP PREE MEDITATED! I was LIVID. I had to stop myself and just count and pray really hard. I got up walked outside and just sat. She knew she had errored.
Her daddy took her and made her clean it all up. Which was like TORTURE. Later she came and said Mommy Im SOOOO sorry I was PLUNDERING. (hahaha I tell her all the time STOP PLUNDERING) she is a big meddler and has always gotten into EVERYTHING you couldnt turn your head for 2 seconds and she had disassembled my house almost. THAT Is why we have hardly anything set out anymore at my house. Im scared she will hurt herself. IM just now starting to decorate my house a little bit.
I thank God it didnt hurt her but oh It scares me to pieces. so no more going to the bathroom by herself. she is 4 I thought she can go potty without mommy standing OVER HER for once in her life but.. nope.
Marking this up to more lessons learned… for all of us. I can’t wait to scrap the pictures now that I am not quite as angry.